{"id":7197,"date":"2021-09-27T00:00:00","date_gmt":"2021-09-26T23:00:00","guid":{"rendered":"https:\/\/instrid.sk\/uncategorized\/poistovna-im-nepreplatila-45-tisicovu-liecbu-museli-si-na-nu-zobrat-aj-uver\/"},"modified":"2021-09-27T00:00:00","modified_gmt":"2021-09-26T23:00:00","slug":"poistovna-im-nepreplatila-45-tisicovu-liecbu-museli-si-na-nu-zobrat-aj-uver","status":"publish","type":"post","link":"https:\/\/instrid.sk\/en\/archiv\/poistovna-im-nepreplatila-45-tisicovu-liecbu-museli-si-na-nu-zobrat-aj-uver\/","title":{"rendered":"Pois\u0165ov\u0148a im nepreplatila 45 tis\u00edcov\u00fa lie\u010dbu. Museli si na \u0148u zobra\u0165 aj \u00faver."},"content":{"rendered":"

Diev\u010dat\u00e1\u00a0bojuj\u00fa s\u00a0autoimunitn\u00fdm ochoren\u00edm u\u017e nieko\u013eko rokov. Cesty sa im spojili najm\u00e4 pre ich diagn\u00f3zu. Spolo\u010dne zalo\u017eili ob\u010dianske zdru\u017eenie Kr\u00f4\u010dik vpred<\/strong>, ktor\u00e9 je zameran\u00e9 na pomoc a\u00a0podporu \u013eu\u010fom, ktor\u00ed sa ocitli v\u00a0rovnakej situ\u00e1cii. Prostredn\u00edctvom blogu \u010di instagramu sa sna\u017eia pribl\u00ed\u017ei\u0165 lie\u010debn\u00e9 met\u00f3dy, ktor\u00e9 im zlep\u0161ili zdravotn\u00fd stav.<\/p>\n V\u013eavo sa nach\u00e1dza 27 ro\u010dn\u00e1 Michaela a ved\u013ea nej sed\u00ed 33 ro\u010dn\u00e1 Zuzana | krocikvpred.sk\n

Zuzane diagnostikovali ochorenie\u00a0po\u010das \u0161t\u00fadia na vysokej \u0161kole. Mala len 22 rokov a\u00a0svoje pr\u00edznaky pripisovala zmene prostredia \u010di podp\u00e4tkom.<\/strong> Okrem \u00fanavy, to\u010denia hlavy, t\u0155pnutia r\u00fak a\u00a0n\u00f4h ju za\u010dala tr\u00e1pi\u0165 aj ch\u00f4dza (odrazu nevedela prejs\u0165 v\u00e4\u010d\u0161iu vzdialenos\u0165). Chodidl\u00e1 sa jej vo vysok\u00fdch top\u00e1nkach za\u010dali vyt\u00e1\u010da\u0165 na stranu. Ke\u010f zmena obuvi nepomohla, nav\u0161t\u00edvila svojho lek\u00e1ra.<\/p>\n

Po nieko\u013ek\u00fdch na oko ,,pozit\u00edvnych“ vy\u0161etreniach dostala n\u00e1lepku hypochonder, nakoniec jej po roku ozn\u00e1mili, \u017ee m\u00e1 Skler\u00f3zu multiplex.<\/strong><\/p>\n Toto ochorenie bolo pre Zuzanu dlho tabu a\u00a0s\u00a0\u013eu\u010fmi sa o\u00a0\u0148om ve\u013emi nerozpr\u00e1vala, a\u017e k\u00fdm jej do \u017eivota nepri\u0161la Michaela | @krocik_vpred\n

Michaela poci\u0165ovala prv\u00e9 pr\u00edznaky u\u017e v\u00a018 rokoch. Za\u010dala jej t\u0155pnu\u0165 prav\u00e1 \u010das\u0165 brucha, o\u00a0p\u00e1r mesiacov na to jej st\u0155pla aj prav\u00e1 noha.<\/strong> Ochorenie jej potvrdil a\u017e neurol\u00f3g po vy\u0161etren\u00ed magnetickou rezonanciou a\u00a0odbere mozgovomiechov\u00e9ho moku.<\/p>\n

Spoznali sa v \u010dak\u00e1rni u neurol\u00f3ga\u00a0<\/strong><\/h3>\n

Hoci ich spojila nepr\u00edjemn\u00e1 choroba, rozhodli sa urobi\u0165 pre seba i\u00a0pre \u010fal\u0161\u00edch \u013eud\u00ed s\u00a0rovnakou diagn\u00f3zou maximum.<\/strong> V\u00a0roku 2019 diev\u010dat\u00e1 zalo\u017eili ob\u010dianske zdru\u017eenie Kr\u00f4\u010dik vpred, o\u00a0rok nesk\u00f4r vytvorili vlastn\u00fd blog a\u00a0na Instagrame s\u00fa akt\u00edvne od apr\u00edla. Aktu\u00e1lne sa so svojimi sledovate\u013emi delia o\u00a0ne\u013eahk\u00fa cestu za zdrav\u00edm.<\/p>\n

Rozhodli sa podst\u00fapi\u0165 experiment\u00e1lnu lie\u010dbu – Transplant\u00e1ciu kme\u0148ov\u00fdch buniek<\/strong>.<\/p>\n

Aj napriek tomu, \u017ee na Slovensku je<\/strong> u\u017e spom\u00ednan\u00e1 lie\u010dba pova\u017eovan\u00e1 za experiment\u00e1lnu<\/strong>, pod\u013ea Michaelin\u00fdch slov v\u00a0Rusku \u010di v \u00a0Mexiku je \u00faplne be\u017en\u00e1. Pois\u0165ovne 45 tis\u00edcov\u00fd z\u00e1krok odmietaj\u00fa preplati\u0165.<\/strong> Po\u017eaduj\u00fa po pacientoch, aby vyu\u017eili v\u0161etku dostupn\u00fa lie\u010dbu na Slovensku, a\u017e potom by sa mali s\u00fastredi\u0165 na zahrani\u010die.<\/p>\n \u00dadajne, ak by diev\u010dat\u00e1 vy\u010derpali v\u0161etky dostupn\u00e9 lie\u010debn\u00e9 techniky, ktor\u00fdch je v s\u00fa\u010dasnosti okolo 12-13 na transplant\u00e1ciu by bolo u\u017e neskoro | @krocik_vpred\n

Ako si drah\u00fa lie\u010dbu uhradili?<\/h3>\n

,,Zalo\u017eili sme transparentn\u00fd \u00fa\u010det, kde sme vyzbierali 10 tis\u00edc eur. Tieto peniaze sme si rozdelili na polovicu. \u010ealej v\u010faka n\u00e1\u0161mu ob\u010dianskemu zdru\u017eeniu sme si mohli vybavi\u0165 granty. Tie\u017e sme zbierali 2% z\u00a0dan\u00ed. Tie peniaze, ktor\u00e9 boli mo\u017en\u00e9 sme pou\u017eili aj z\u00a0tohto \u00fa\u010dtu.\u201c \u2013 zd\u00f4verila sa Michaela pre UnitedLife<\/strong><\/p>\n

\u010ealej povedala, \u017ee cie\u013eom zdru\u017eenia nebolo vyzbiera\u0165 finan\u010dne prostriedky a\u00a0pou\u017ei\u0165 ich na transplant\u00e1ciu kme\u0148ov\u00fdch buniek. Tieto peniaze si odkladali u\u017e dva roky pred samotn\u00fdm zalo\u017een\u00edm organiz\u00e1cie.<\/p>\n

,,Najv\u00e4\u010d\u0161\u00ed podiel na tom v\u0161etkom mala na\u0161a rodina, alebo sme si po\u017ei\u010dali, pr\u00edpadne zobrali \u00faver.\u201c<\/strong> \u2013 dodala Michaela<\/p>\n

V\u00a0s\u00fa\u010dasnosti sa dvojica nach\u00e1dza v\u00a0Moskve a\u00a0dnes ich \u010dak\u00e1 posledn\u00e1 \u0161tvrt\u00e1 d\u00e1vka chemoterapie.\u00a0<\/strong>V\u00a0stredu podst\u00fapia transplant\u00e1ciu o\u010disten\u00fdch kme\u0148ov\u00fdch buniek, a\u00a0potom bude nasledova\u0165 izol\u00e1cia v\u00a0d\u00f4sledku mo\u017enej infekcie.<\/p>\n

Podporu im prejavila aj zn\u00e1ma moder\u00e1torka<\/h3>\n Screenshot instagramov\u00e9ho pr\u00edbehu Veroniky Ostriho\u0148ovej Cifrovej | @veronikaostrihonova\n

Na svojom instagramovom profile moder\u00e1torka Veronika Cifrov\u00e1 Ostriho\u0148ov\u00e1 vyjadrila diev\u010dat\u00e1m obdiv. Z\u00e1rove\u0148 vyz\u00fdva svojich sledovate\u013eov, aby si pozreli obsah, ktor\u00fd tvoria.<\/p>\n

\u010co je to Skler\u00f3za multiplex (SM) ?<\/h3>\n

Ide o\u00a0z\u00e1va\u017en\u00e9 autoimunitn\u00e9 ochorenie s\u00a0nepredv\u00eddate\u013en\u00fdm priebehom progresie.<\/strong> In\u00fdmi slovami imunitn\u00fd i nervov\u00fd syst\u00e9m nap\u00e1da svoje vlastne bunky. \u00a0Ochorenie je zodpovedn\u00e9 za po\u0161kodenie \u010dasti mozgu a\u00a0miechy, \u010d\u00edm sa vytv\u00e1raj\u00fa jazvovit\u00e9 l\u00e9zie (lo\u017eisk\u00e1), ktor\u00e9 je mo\u017en\u00e9 monitorova\u0165 aj pomocou magnetickej rezonancie (MRI). Pacienti \u010dastokr\u00e1t zostan\u00fa imobiln\u00ed a\u017e\u00a0 s\u00fa napokon odk\u00e1zan\u00ed na pomoc druh\u00fdch.<\/p>\n

Skler\u00f3za multiplex sa naz\u00fdva \u00a0aj ako ochore<\/strong>nie mnoh\u00fdch tv\u00e1ri<\/strong>. To spravidla preto, \u017ee samotn\u00e1 diagnostika je ve\u013emi n\u00e1ro\u010dn\u00e1<\/strong> kv\u00f4li pr\u00edznakom, ktor\u00e9 sa zna\u010dne l\u00ed\u0161ia medzi typmi MS a\u00a0medzi samotn\u00fdmi \u013eu\u010fmi. Naj\u010dastej\u0161\u00edmi sympt\u00f3mami s\u00fa chronick\u00e1 \u00fanava, do\u010dasn\u00e1 strata zraku, poruchy hybnosti, poruchy citlivosti ako napr\u00edklad t\u0155pnutie a brnenie.<\/p>","protected":false},"excerpt":{"rendered":"

Diev\u010dat\u00e1\u00a0bojuj\u00fa s\u00a0autoimunitn\u00fdm ochoren\u00edm u\u017e nieko\u013eko rokov. Cesty sa im spojili najm\u00e4 pre ich diagn\u00f3zu. Spolo\u010dne zalo\u017eili ob\u010dianske zdru\u017eenie Kr\u00f4\u010dik vpred, ktor\u00e9 je zameran\u00e9 na pomoc<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[51],"tags":[],"class_list":["post-7197","post","type-post","status-publish","format-standard","hentry","category-archiv","two-columns"],"_links":{"self":[{"href":"https:\/\/instrid.sk\/en\/wp-json\/wp\/v2\/posts\/7197","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/instrid.sk\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/instrid.sk\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/instrid.sk\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/instrid.sk\/en\/wp-json\/wp\/v2\/comments?post=7197"}],"version-history":[{"count":0,"href":"https:\/\/instrid.sk\/en\/wp-json\/wp\/v2\/posts\/7197\/revisions"}],"wp:attachment":[{"href":"https:\/\/instrid.sk\/en\/wp-json\/wp\/v2\/media?parent=7197"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/instrid.sk\/en\/wp-json\/wp\/v2\/categories?post=7197"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/instrid.sk\/en\/wp-json\/wp\/v2\/tags?post=7197"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}